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Hi B.

thank you very much for your detailed response. I’ll go ahead and try the L-Theanine and thank you as well for redirecting me to the article link. I really appreciate your help.

Hi B.

Thank you for the Instagram story this morning on Nurosym. Actually I trialled it as well from around November through to January after the Functional Gut Clinic here in London kindly lent me one to try.

To be honest, I found it quite tricky to use. The main issue for me was positioning the wire properly around the ear, and then after about 15 minutes the tragus clip would become quite painful. I was advised to either break the sessions into smaller chunks or moisten the tragus slightly with water or saliva to reduce the discomfort, but even then I struggled with it overall.

I’ve had the Pulsetto device for about a year as well, although I need to be more consistent with using it. The downside with that one is the gel, because having to apply it to the connectors or neck gets quite messy.

I was also looking into trying the Truvaga device too.

Before going down the device route, I tried the more conventional vagal toning approaches for my gastroparesis, humming, singing, breathing exercises, etc., but unfortunately I didn’t notice any meaningful difference.

I saw Dr Haidry , my gastroenterologist, on 27 April , and he’s referred me for a gastric emptying study at the Functional Gut Clinic on Wednesday 13th May. Interestingly, it’s not the standard gastric emptying scan with radioactive imaging. This one is a breath test over about four and a half hours after eating a small porridge meal with honey with radioactive scanning. I’ve honestly never come across this type of gastric emptying test before.

Depending on the results and severity of the gastroparesis, the next options may be either the G-POEM procedure or potentially the Enterra gastric pacemaker. I’d actually been reluctant to see him again since late 2024 because previously surgery seemed like the only pathway being discussed, so it was interesting that this was the first time he mentioned the Enterra device as an option.

Still early days though, so I’ll see what comes out of the test on the 13th.

By the way, did you say your gastroparesis started after a viral infection ?

Hi B.

I’ve asked for further clarity. As soon as I hear from Neena, I’ll be in touch. I’ve also directed her to the website with regards to joining the programme.

Thank you B for the alternative product.

Thanks B. <div>

Re amino acid powder.

Could this work?

https://www.amritanutrition.co.uk/products/amino-acid-base-unflavoured-200g

Could I mix it in my hot food or has to be water?

</div>

Hi B,

Thank you so much for your detailed reply. I really appreciate it.

I had a very difficult night with a lot of throbbing and burning pain. I’m used a cold pack last night as you recommended as well and I’m seeing the nurse at my local GP surgery as well today at midday.

At A&E hospital, only my left leg was dressed, the right wasn’t, which I didn’t realise at the time, so I’ll raise this with the nurse today in my GP surgery. Luckily, I have a portable red light therapy device which I usually use for the abdominal pain which I’ll use on my legs too. I’ll visit the chemist today for arnica cream; if no dressing is applied, I may try it topically (or ask about tablets, though my stomach is very sensitive).

Thank you as well for the PDF on eating hygiene, just wanted to check that this was the correct attachment. I’m still really struggling with protein due to severe heartburn and gastroparesis; even blended chicken causes significant discomfort into chicken vegetable soup which I have daily.

Any recommendatiin on the vitamin C which is easy on the stomach. I’ve tried seeking health liposomal liquid version, but I get a burning sensation.

Thanks again for your support.

Hi B,

Thank you very much for your response. I wanted to ask, would it be okay to open up the SB capsule and sprinkle the contents into a glass of water before drinking it or into my food before taking it?

I also looked at what Dr. Crista mentioned just now , and yes, she recommends avoiding SB and instead suggests taking the Microlabs Megaspore probiotic. It’ll be interesting to see what the Voll machine indicates about the probiotic and other supplements when I meet Geoffrey Montague Smith on October 16th.

I did the A.R.T test last week, and interestingly, most of my supplements came up as a “no,” but SB was actually on the “yes” list. It’s strange how one test can give a positive result for something while another suggests avoiding it, it really adds to the confusion.

That’s part of the challenge for me, with so much going on, it can be hard to know what’s truly right. I’ll try your approach of starting with very small amounts and then my thought not taking it daily, leaving a day or two in between.

Thank you, B.

Tomorrow, I’ll upload the forms I needed to complete before Dr. Lulsegged selected the blood test markers for Lyme and others. He also wants me to have a mitochondrial test, which includes a blood test.

This is the lab that performs both the Lyme and mitochondrial test:

https://aonm.org/

aonm.org

AONM: HOW WE WORK

The AONM approach is to encourage a combination of the skills of nutritional and other natural therapists with those of the medical profession. We provide an interface from where specialist and cutting-edge tests in the fields of Lyme Disease, related … Continue reading

Hi B.

Thank you.

I’ve just started taking SB for two main reasons: first, to help keep H. pylori at bay, and second, to support my secretory IgA. If it also helps with fungal overgrowth, that’s an added bonus, as I wasn’t aware of that. I’m not taking any probiotics right now, so I thought I’d give this a try.

With this mind, I guess I can take it with food?

Hi B.

I was focusing on the supplements and thought another diet to follow. I didn’t think about the factors you mentioned could cause oxalate issue. Thank you.

B.

Meeting Geoffrey on October 16th.

Thank you B. I’ve requested these additional markers.

Hi B.

I completely overlooked that I raised this with you before. Also, I’ve just sent an email to Gregory to check his availability before I explore ART further.