Kkol
Forum Replies Created
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Your advices are always valuable and doable and make things easier. Thank you B I’ll look into the 10 days detox
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No imaging yet. He eats well but doesn’t gain weight but his food is not the best when he’s out. I’ll check these thank you. Any comment on his CBC? Elevated neutrophils and low lymphocytes?
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No we didn’t see geneticist we were all this time with neurologist. Thank God all his tests came back negative. His TSH is in great place (it use to come a bit high 3-5). Will check the course. Every time I say I need to watch the courses life is throwing challenges that keeps my mind busy and not focusing. But will try to do this thanks B
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No he wasn’t sick at that time
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We have some updates. We were following up with neurologist all that time who conducted few tests including muscle test similar to heart ECG and came back normal then he requested antibodies tests (plenty of it) and all came back negative thank God. Base line CK levels are normal. So the dr said to go ahead and live life normal. But now we are scared he will have same issue of he goes back to the gym.
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Watched the first one and good call! We already started giving him glutathione
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I’ll check it thank you. But any quick hint on what it is the reason?
Nausea is much better tho.
Also B. Any sport medicine dr that you recommend here in Dubai?
Thank you
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Thank you B! You are exceptional and I appreciate all your effort.
Sorry I haven’t been around but I came to update you one more test was conducted yesterday and here are the results. All normal I guess and the nephrologist that we know in Germany asked us to redo the CK test after few weeks to see the base line and if normal this is good news as this can rule out anything related to birth muscle distrophy and we did it yesterday (1 month from the date of hospital admission) attached are the results and in two days neurologist appointment.
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And one more question B if you don’t mind. The neurologist requested muscles biopsy and the insurance refused because no relevant symptoms or any other test results. I want to ask if you think this is a good and safe test to conduct? We will do it out of pocket just not sure how safe is it.
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We are back to Dubai and will call Genomix tomorrow. But can you please tell me what should I ask for? I don’t know who they are and if it’s a clinic or what exactly. Thank you
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Thank you B for everything. Your support in this very stressful time is very appreciated. Even when you have your own as well. May his bless you and yours. Will be waiting to see if the dr will take the case. Thanks a lot
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Yes results so far are all fine.
Honestly CK went down at home faster than hospital with 2 L IV and 2 L water.
We gave him daily organic coconut water 500ml, 2 tabs Electrolytes from Trace minerals (attached is the content per 6 tablets) we weren’t sure how much safe dose to tube so we went by 2. Also Q10, magnesium, D3/k2, and cod liver oil. And mix low dose of A C E and zinc.
Dr did electro conduct muscle test. Not sure what is the name and apparently results are normal as the dr didn’t call but will see him in person next week.
Insurance didn’t approve muscles biopsy and the dr don’t see it’s needed.
Genetic testing will come soon but we are thinking first to see sport injury dr? Dunno if this is a good idea.
So far all drs assuming that Rhabdo first time was from intense workout plus dehydration which was the case while Devine time it was viral once groin followed by exercise before recovery.
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We just got the results. Doctor didn’t call or comment and waiting for appointment next week. Do you have any comment B? So we know what to ask at least. I am not sure if Aldolase is expected to be borderline after Rhabdo episode. Your thought will be much appreciated
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Some update B.
Here are some extra tests done. CK went down from 15000 to 400 something that was 3 days after discharge from hospital (a week ago)
Also ANA was done, anti CCP and Aldolase.
TSH and D
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Today we saw family medicine Dr from Germany she was very cooperative. She requested tsh to begin with and vitamin D, CK total and CK MB just to make sure heart is fine even though we told her in emergency my son had ECG and all fine.
Tomorrow Neuro appointment not sure what to expect. Will see.
Thank you B.
