@Kkol no, that panel won’t really add much, except to differentiate between heart muscle and skeletal muscle involvement, and if budget is a concern, I’d prefer you spend your money on tests that will help provide information that can help you take the right preventative and corrective action.

I still believe efforts are better spent…

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@Kkol you’re so welcome! This is exactly why I created B Better, so it fulfills me to know you feel well supported.

@Kkol yes, I commonly refer to both Dr. Sean and Dr. Heather. Both are good. Dr. Sean is “labeled” as a homeopath for insurance purposes, but he works very much like a naturopath and functional medicine doctor. Dr. Heather Eade is a naturopath, so functional medicine is within her toolkit and approach.

In terms of insurance, alternative…

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Hi @Kkol – I’m really sorry to hear about what your son is going through. But I want to commend you on the swift actions you are taking and the additional tests you are considering pursuing.

Unfortunately, there is no direct or immediate way to lower CK levels. But rest and hydration are critical first steps to help flush out CK through…

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@Kkol First Genomix gene laboratory got back to me. Their geneticist, Sahar Abulaziz recommends that you come in for a proper consultation to get the medical history, and then she would be able to recommend appropriate genetic tests. The consultation is free of charge. You can call or send them a WhatsApp to book the appointment – +971 4 344…

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Hi @Kkol – the doctor got back to me. He doesn’t have experience with rhabdo but said that he’d ask his colleagues and get back to me. Still on it…

As for the biopsy, it is invasive so I’d want to know the benefits of doing this test. What is the doctor hoping to confirm or rule out with biopsy?

As for First Genomix, they are a genetic lab…

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