We just got the results. Doctor didn’t call or comment and waiting for appointment next week. Do you have any comment B? So we know what to ask at least. I am not sure if Aldolase is expected to be borderline after Rhabdo episode. Your thought will be much appreciated

Today we saw family medicine Dr from Germany she was very cooperative. She requested tsh to begin with and vitamin D, CK total and CK MB just to make sure heart is fine even though we told her in emergency my son had ECG and all fine.

Tomorrow Neuro appointment not sure what to expect. Will see.

Thank you B.

I just want to make sure if those tests to see which muscles exactly is damaged, are they important? Will they change anything in terms of approach or treatment?

Feeling supported alone is priceless at this stage. Thank you million

Also, can you please tell me what is the difference between Dr Heather and Dr Sean Penny regarding approach? I’ve heard about them both but I don’t know who does what exactly. Hoping insurance will cover some things since it covers alternative medicine

B. You have no idea how much I appreciate your reply and even effort to reach out to someone to ask if they can help. I’m speechless. Thank you d

We have tomorrow a regular Family Dr appointment to see what tests we can get and then we will do the rest with the relevant dr.

And will keep you posted

Thanks million for the support! At least we feel…

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