Kkol
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Kkol replied to the discussion Rhabdo. Guidance needed in the forum Symptoms & Health Conditions 2 months ago
Reply to Rhabdo. Guidance needed
Yes results so far are all fine.
Honestly CK went down at home faster than hospital with 2 L IV and 2 L water.
We gave him daily organic coconut water 500ml, 2 tabs Electrolytes from Trace minerals (attached is the content per 6 tablets) we weren’t sure how much safe dose to tube so we went by 2. Also Q10, magnesium, D3/k2, and cod liver oil.…
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Kkol replied to the discussion Rhabdo. Guidance needed in the forum Symptoms & Health Conditions 2 months ago
Reply to Rhabdo. Guidance needed
We just got the results. Doctor didn’t call or comment and waiting for appointment next week. Do you have any comment B? So we know what to ask at least. I am not sure if Aldolase is expected to be borderline after Rhabdo episode. Your thought will be much appreciated
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Kkol replied to the discussion Rhabdo. Guidance needed in the forum Symptoms & Health Conditions 2 months ago
Reply to Rhabdo. Guidance needed
Some update B.
Here are some extra tests done. CK went down from 15000 to 400 something that was 3 days after discharge from hospital (a week ago)
Also ANA was done, anti CCP and Aldolase.
TSH and D
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Kkol replied to the discussion Rhabdo. Guidance needed in the forum Symptoms & Health Conditions 2 months ago
Reply to Rhabdo. Guidance needed
Today we saw family medicine Dr from Germany she was very cooperative. She requested tsh to begin with and vitamin D, CK total and CK MB just to make sure heart is fine even though we told her in emergency my son had ECG and all fine.
Tomorrow Neuro appointment not sure what to expect. Will see.
Thank you B.
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Kkol replied to the discussion Rhabdo. Guidance needed in the forum Symptoms & Health Conditions 2 months ago
Reply to Rhabdo. Guidance needed
I just want to make sure if those tests to see which muscles exactly is damaged, are they important? Will they change anything in terms of approach or treatment?
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Kkol replied to the discussion Rhabdo. Guidance needed in the forum Symptoms & Health Conditions 2 months ago
Reply to Rhabdo. Guidance needed
Feeling supported alone is priceless at this stage. Thank you million
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Kkol replied to the discussion Rhabdo. Guidance needed in the forum Symptoms & Health Conditions 2 months ago
Reply to Rhabdo. Guidance needed
Also, can you please tell me what is the difference between Dr Heather and Dr Sean Penny regarding approach? I’ve heard about them both but I don’t know who does what exactly. Hoping insurance will cover some things since it covers alternative medicine
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Kkol replied to the discussion Rhabdo. Guidance needed in the forum Symptoms & Health Conditions 2 months ago
Reply to Rhabdo. Guidance needed
B. You have no idea how much I appreciate your reply and even effort to reach out to someone to ask if they can help. I’m speechless. Thank you d
We have tomorrow a regular Family Dr appointment to see what tests we can get and then we will do the rest with the relevant dr.
And will keep you posted
Thanks million for the support! At least we feel…
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Kkol replied to the discussion Rhabdo. Guidance needed in the forum Symptoms & Health Conditions 2 months ago
Reply to Rhabdo. Guidance needed
Thank you B. Every single info would be very helpful as we are lost on what to do and where to start. Doctors seem clueless and we have to do our own effort at the moment.
I attached Potassium and calcium and ionized calcium and other tests that we just received from hospital after his discharge. These were done during his 3 days stay.
Also,…
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Kkol started the discussion Rhabdo. Guidance needed in the forum Symptoms & Health Conditions 2 months ago
Hi B and Daniel. Reaching out here out of desperation this time. B you remember your first study case on this forum was with my 22 years old son regarding his chronic nausea.
Last year we found out he has pancreatic insufficiency and he was given Creon for short period and levels were good again.
But nausea wasn’t resolved as we hoped.
4 months ago…
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