Annie
Forum Replies Created
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I wanted to add that he has agreed to go to a dentist. He has that tooth that’s completely black in the back. Has gone bad. It’s been that way for over a year.
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Additional symptoms I just remembered:
-diagnosed with pcos in high school
-when menstruating I get terrible shooting pains that start at the base of my butt and go up, similar to a muscle spasm
– often see bubbles in urine/particles in urine
– I don’t drink much water -
@Bernadette Abraham Hi B, I’ll answer everything below in the numerical order you mentioned everything above.
1. Absolutely. Gluten and sugar definitely seem to hurt him. He has a really big sweet tooth so the days he has a lot of gluten and sugar, within hours he’ll get worse. Not sure if there’s a safe sugar alternative. I don’t have enough knowledge on this topic but I’ve heard a lot of the sugar alternatives are harmful for the gut. Are there any that aren’t harmful?
My mom is the only one he’s willing to hear out. But unfortunately, he has some delusions, he isn’t thinking clearly, so it’s often hard ,even for her, to reason with him. He think since chic fil a is Christian owned company, that eating it will
help purify his body, even though their food is just awful. When she tells him the food isn’t very good for him and has a ton of harmful ingredients, he just thinks he’s right and she doesn’t understand.I do think taking him to all gluten free restaurants and cafes is a wonderful idea.
Before his episode he would have cut gluten, dairy and sugar in a heart beat, but he just isn’t thinking clearly right now.
Thank you so much for the gluten free bun options I will pass this information to my mother, it’s very helpful.
2. They have an air doctor, the large one.
I will take the course by Dr Jill and summarize the information for my mother. Thank you.
3. Yes, he’s taking the lowest dose possible that I could find, pure encapsulations brand. He takes it a few hours before bed. Debating on doubling the dose.
4. Ok sounds good. We’ll be starting the double and divided dose of l theanine tomorrow
5. Was wondering if we should add cymbiotika glutathione to his supplements. What are your thoughts?
6. If he starts the integrated therapeutics detoxification factors, does he stop taking his other b complex? Or can he take both everyday? Or is it better to alternate days?
7. I sent my mother the link, she said she’d take a look at the sauna and place the order
8. The only issue with any testing right now is getting him to agree to it. He’s gotten better and is slowly warming up to the idea of an “ annual checkup”. Every day that passes he seems to present with less of his Symptoms, minus the sudden dips he has when he eats gluten and sugar. Hoping he gets well enough soon so he can get all of the recommended tests done.
Thanks so much B.
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@Bernadette Abraham Hi B, thanks for the herb suggestions. I’ll purchase from mountain house, I’ve heard before too, that they’re a good company for herbs.
Yes, I’ll list symptoms I’ve had, random ones, in hopes it might shed light on what might be happening. From there I guess, perhaps you can suggest some tests I can take if there’s enough information. I haven’t had any blood work in a while. Please also suggest a basic list of blood work I should have done.
Definitely, I will schedule to see a neurologist if you think we should rule out what they have to say.
Random symptoms:
-Rosacea
-vertical grooves on nails
-missing crescent white moons shapes at base of nails, only have them on thumbs
-enlarged thyroid to the touch ( my mother in law noticed when I asked her to check it by hand. She’s a physician)
-abnormally large pores all over cheeks
-back pain
– difficult pregnancies. The last one was worse than the first. I was failing to progress and was past due. Scheduled induction but still would not progress with medications. They used a foley balloon to pry me open and manually dilate, it was horrifying and I had to do it without pain management. Also, when finally ready to deliver, I had such bad contractions my screams were heard through the halls before I got my epidural. The pregnancy itself was extremely difficult as well, I had such bad nausea and fatigue I could not get out of bed and it got so bad for three months before the last month, where I couldn’t function enough to care of my son, so my mom helped me
-prone to puffy face and inflammation in body
– aching joints
-at times I feel stress changes my hormones in a way where it masculinizes my face ( once I took vitex berry and my face completely softened and changed, feminized)
-prone to lots of hair loss especially at either side of my hairline above my eyebrows
-tendency to hold weight in lower abdomen
– if I get stressed enough I get, what I call, stress sweat, it’s more pungent than my normal sweating.
-anxiety and adhd ( caffeine makes me sleepy)
– as a child I would get such bad anxiety I’d have memory loss, for example, if dropped at school late, I’d forget my entire class schedule like amnesia, even though, I’d been familiar with the schedule for months
-in middle school I had an abnormal spike in testosterone that eventually settled
– no one can tell but I have trouble holding eye contact with strangers, you’d never know, but their gazes seem heavy and make me uneasy. People think I’m friendly and outgoing, so it’s not something anyone can sense.
-poor academic performance before college. In college I taught myself tricks to learn material better; to overcome learning issues. I became a well above average student and had the highest grades in my classes usually.I tried to list anything that seemed to be abnormal from my perspective. I’m not quite sure what is of value information wise and what is not. Looking forward to hearing your thoughts, thanks B. Always appreciate the knowledge and information you and Daniel share, bless you both.
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The involuntary muscle movements have gotten much better, but still have them once or twice a day.
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@Bernadette Abraham Hi Bernadette, sorry for the delayed response. I was having some phone issues , thank you for the information.
He was very suspicious and basically completely against any kind of testing until a few days ago. He’s slowly warming up to the idea. Once he agrees to the tests I’ll upload all results here.
Yes I completely understand. There are some naturopathic doctors here that offer this protocol. I ordered some books written on this protocol to understand it better and find out exactly what goes on. Wanted to know your thoughts, thank you for explaining that.
I will need to get back to you about the type of bowel movements. He makes frequent visits to the bathroom, not sure if it’s to urinate or to void bowels. I will have my mother find out. But he’s having to run to the bathroom more often than the average person.
I’m not sure what kind of difference the l-theanine has made, he’s at 200mg. Overall he seems to be getting better, I’m sure it’s helping, but hard to say exactly how, just an overall improvement in symptoms. He seems to realize now that he’s sick, so that in itself is a huge plus.
The melatonin has really helped his sleep. Thank you so much for all of information you and Daniel have given about supplements. I think he will barely wake up through the night after falling asleep. It’s been very helpful to keep him asleep and give him a deeper sleep. He only sleeps 6 hours but at least it’s a deeper sleep. One thing however, regarding sleep, that my mother noticed, was that he snores a lot when he lays on his back, but when he’s on his side the snoring will stop, not sure if that’s important.
Since he’s gotten a bit better I can ask my mother for more information. It was hard getting information when this initially happened, it was very chaotic for some reason. As far as water, I believe they have an under sink filtration system. Not sure what kind. I’ll find out and report back soon.
Once I get a little more information I’ll post about his food/water and nutrition. I’ll ask my mother about this again tomorrow.
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@Daniel Schepers Hi Daniel, sorry for the delayed response, I’ve been having technical issues with my phone and finally had it repaired.
Thank you for the information. There are a handful of local naturopathic doctors that specialize in the Walsh protocol. One would go to them and be given dosages as well as be closely monitored. I was curious on what exactly goes on in the protocol so I read up a bit on it. I also wanted to hear what you and Bernadette thought, thank you for the information.
He wasn’t too keen on the idea of going to a doctor or getting blood work/tests done of any kind. He’s slowly becoming more and more understanding and we hope he’ll agree to get some testing done soon. As soon as he does and we get the results, I’ll upload them here.
My mother also noticed he does not have any crescent/moon shaped white areas on the base of his finger nails. Is that normal? Not sure if that means anything, but thought I’d mention it.
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@Daniel Schepers thank you so very much for the information. My uneducated guess is that there might be mold and possible autoimmune at play, but we need to get him well enough/clear headed enough to get him to agree to testing.
You mentioned vitamin e and glutathione, do either cause fluctuations in your neurotransmitters? In an older post I mentioned I wanted to avoid anything that would do that since schizophrenics already have an imbalance in serotonin, dopamine and gaba.
If it doesn’t cause any fluctuations, please recommend a good clean option for vitamin e and glutathione ( although I know cymbiotika has a glutathione and last i checked they’re pretty good).
For th4 vitamin b complex from thorne, thank you for choosing a methylated version, is there another brand that also has that option? Upon checking out in my Amazon cart they gave me a prop 65 warning on this product.
Also, for the liquid zinc recommended , i really appreciate the calming glycinate form, is there however, an option for one without stevia and citric acid ? Pill form is ok.if it’s powder and can be opened and mixed in juice.
Thank you again Daniel really appreciate you and Bernadette, and everyone at B better for your help.
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@Bernadette Abraham thank you so very much for all of the information you shared. He’s unfortunately become incredibly uncooperative as far as diet. He will just drive and get himself food we’ve suggested him not to eat. With this possible condition people are not very trusting of others, in his case he has a false sense of “he knows better”
He is willing to take “vitamins and supplements” for now.
– Was thinking of starting with l-theanine and for now only found the pure brand that was accessible same day on amazon. Was there another brand you liked for this? In the studies a dose of around 200 MG was used so i guess we’ll go for 200.
– We also wanted to start melatonin but weren’t sure of what brand or the amount. I didn’t see that information In the melatonin study.
-for huperzine a I also needed a good brand, and I didn’t see dosage for this one either in the study.
– again unfortunately he’s not listening to us at all as far as diet, but he does take orange juice in the morning with vitamins ( cymbiotika vitamin c and magnesium, jarow zinc copper), and Nordic naturals fish oil.
– the mobile phlebotomist idea is wonderful but he unfortunately, is not willing. The best that can be done are the at home testing kits that require hair and urine (do they need hair from the root? And how much hair is needed per test?) , we will tell him it’s a complimentary and fun health check of some kind, perhaps “a fun free test set given to my husband to pass along”. He’s always been, not very warm to the idea of of anything medical related, as have I, but he’s even more suspicious of it now.
– I wish so badly that he’d remove gluten and dairy from his diet. He’s always been very sensible and would have immediately stopped if he was thinking clearly. But nothing can be done
They noticed his sleep and behavior worsen the days he eats chic fil a, but not Arab kefta and rice from a restaurant.
My parents also wanted to thank you and your team for the guidance and information you’ve given. We’ve all been feeling so incredibly sad and lost, we atleast feel a little less lost with the help of a platform like b better.
Hoping we find something in the at home tests to shed light on his situation.
For diet not much can be done, it depends on his moods. My mother makes him food at home and it goes untouched 90% of the time. All we can do is push anti inflammatory supplements for now. Also have high hopes for the l theanine. Fingers crossed.
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@Bernadette Abraham thank you ❤️ he’s an incredibly kind and loving human being and this is the very least I can do for all he’s done for me.
Thank you also for the attached links. The one regarding sleeping aids, schizophrenics have some issues with gaba, serotonin and dopamine and im not aure what else, like you mentioned a possible issue with neurotransmitters. So I was wondering, are there sleep aids that don’t effect those? I’m worried it will throw the already imbalanced neurotransmitters and cause another manic episode. Is there something for relaxation perhaps? I’m just not sure what sleeping aids someone like him could safely use. A pcp doctor friend here suggested Xanax but I’m not even sure if that’s safe, and it’s also highly addictive from what I read online.
Also in his current state he’s not willing to go anywhere to get blood drawn or get any scans. He thinks he’s ok. We can possibly get him to give us hair and urine for the other at home tests, but not drawing blood.
Yes, I will start a new thread for his nutririon now.
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@Bernadette Abraham thank you so much for the additional information. I had reached out to the west coast clinic earlier today and they gave me a quote of almost $8000 for mold ecposure/schizohrenia , she also said the functional tests i mentioned to her were not included in that quote but were needed. If I have my parents get the four tests mentioned by you done first, along with the blood work you mentioned is that a good place to start to give us an idea at least? If something is neccesary they will do it immediately, but if its not, and a cost could be cut, they wanted to do that.
Also, Was there a test to check for autoimmune? And what is the best test for thyroid? I wanted to upload all information here first and perhaps do the spect scan after we see where we stand and if it’s absolutely necessary. If we can see improvement in his condition with your recommendations after seeing his results, maybe a scan won’t be needed. But again, if needed they will absolutely get it done.
I mentioned the information you shared about mold in the home and my parents will be moving out of their house while they renovate now. The construction crew that came a few months ago did not wear any hazmat suits.
My husband who I mentioned is a physician, noted possible seizures yesterday. He zones out and his eyes go blank and he can’t hear what we say to him. This lasts 5-10 seconds.
I’m trying to find a way to recreate the chic fil a spicy grilled sandwich. That seems to be his comfort food right now. He only gets it with sauce meat and bun.
My parents were wondering if there is anything he can take for sleep. He’s been
Taking benadryl in juice. Then suddenly stopped. He gets worse if he doesn’t sleep. During his episode he barely slept an hour for 4 days. He still can’t sleep without benadryl but now wont take it.
Also, is there a mold inspection company you recommend? San Diego area.
Thank you Bernadette. Bless you and your team. Appreciate your guidance and information more than I can express with words.
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@Bernadette Abraham A quick question! The tests mentioned, for hair and urine heavy metal, mycotox, and OAT, does insurance ever cover those or are the tests only used by naturopathic doctors? Same question for the spect brain scan. If there is an insurance company that is known to cover these tests please do let me know so i can tell my parents to go with that insurance company. If everything needs to be out of pocket thats definitely ok too. They’d rather do everything sooner rather than later and get tests done. Thanks.
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@Bernadette Abraham Hi B, thank you so much for the information. I’ll answer all of your questions below following the order in which you asked them.
1) personally it seems his symptoms have gotten worse with time. Although I noticed a slight lack of affect he showed as a child. He smiled and laughed and played like a normal child, but in most of his pictures he would not be smiling ( not sure if this is relevant but wanted to mention it). Also, he has lived with my parents in this family home since birth. It’s a very old home, built in 1977.
– my husband is a primary care physician and recently mentioned to me after his episode that he has noticed in the 4 years of knowing my brother some random Muscle twitches spasms. He also told me he noticed he’d smile to himself before too, and zone out into space, and that symptoms have just gotten worse with time.
– hard to say if symptoms improved on vacation, I think we didn’t fully realize anything was wrong up until now.
2) they are slowly tearing down and rebuilding the house. There has been no construction for the past few months as they wait for permits. Only 20% of the house has been redone so far. The roof had leaks that no one noticed for a while. My guess is that mold has spread throughout the home. They have an air doctor running 24/7.
3) no blood tests or check ups of any kind have been done for years. I will order the tests you mentioned asap and set up a day for the brain scan. In his current state he doesn’t warm up to any suggestions for health and wellness, so it will be done under the guise of routine work needed for travel. In the past he’s preferred natural remedies. He actually has a tooth that had gone gone bad and turned completely black, he started oil pulling and said it felt fine, but not sure if that’s true.
Yes, I suggested removing gluten and dairy to my parents a few days ago. They said, the issue with eliminating certain foods is that he’s not in a clear head space and not behaving like himself. So when anyone suggests health and wellness changes, which he would have definitely listened to before, he just isn’t open to them now. We’re trying to figure out how to help him clear his head enough to where he’s able to understand what’s happening. But we don’t know how to clear his head enough to make the changes. I would ask for supplement recommendations to help clear his head but I guess that doesn’t seem to make sense since we don’t know what’s going on. Or is there something that might help ?
I think that answers everything you mentioned. I will now go and watch all the recommend videos. Please let me know if my answers have lead to any more questions on your end. If I have any other questions I will reach out as they come up.
Again thank you so much Bernadette and Daniel, and your entire team. I thank you from the bottom of my heart for your kindness and guidance.
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@Daniel Schepers Thank you so much Daniel. Where does one order those two labs from for mold exposure?
