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  • Graves’ disease relapse

    Posted by Kkol on January 7, 2025 at 11:07 am

    Hi B. My wife 50 y/o have had Graves’ disease since over 12 years and it was stabilized with low dose metmizol (2.5mg) she also has hot nodule.

    Last three months she had loads of stress and ended up with a huge relapse. Her levels have never been this high (ft3 and ft4) but tsh use to be even lower and anti too higher.

    Anti tsh receptor was max 14 and now 23

    The dr asked her to change to Thimazol 10 mg a day for two months and gave her inderal for palpitation (she was always refusing it because she’s fine and doesn’t feel palpitations always).

    Now he told her to think about surgery and also she’s refusing this. She was thinking to remove the nodule with RF ablation when everything calms down.

    her symptoms aren’t bad now only choking sensation as thyroid got enlarged a bit.

    She’s taking selenium already, D, magnesium, some antioxidants also.

    Thinking now about taking Nattokinase and there is supplement for inflammation called zynflamend (new chapter) but not sure of its ok with her condition.

    Would appreciate your opinion as the dr used fear mongering strategy and told her it’s higher risk for malignancy and she has to remove it even tho the nodule is hot. He didn’t make sense.

    Also please recommend a good endocrinologist in Dubai.

    Kkol replied 3 days, 16 hours ago 2 Members · 8 Replies
  • 8 Replies
  • Kkol

    Member
    January 7, 2025 at 11:09 am
  • Bernadette_Abraham

    Administrator
    January 7, 2025 at 2:06 pm

    Hi @Kkol – sorry to hear that your wife is in a flare at the moment.

    I can also understand why the doctor is suggesting to remove the hot nodule if she’s complaining of a choking sensation, but if she’s against it, then definitely get a 2nd opinion because you’re right to question the removal otherwise.

    A good friend of mine recently had thyroid surgery, so I reached out to her for the name of her endocrinologist. While she mentioned that her doctor isn’t an endocrinologist, she highly recommends her thyroid surgeon, Dr. Roger Moukarbel, at CMC. Of course, as a surgeon, there’s always a tendency to lean toward surgery, but she said that out of all the specialists she consulted (and there were many), he was the most conservative. In fact, he even presented “no surgery” as an option, which she really appreciated. She’s now being followed-up with Dr. Moukarbel’s endocrinologist colleague at CMC simply for follow-ups on her medication but she still recommends seeing him despite being a surgeon.

    If you haven’t yet watched the Thyroid Balance course, I’d encourage you to watch the following videos about Graves’ and thyroid autoimmunity to hopefully help address the root causes while being managed by medication:

    In terms of best way to support your wife, it’ll be similar to other autoimmune conditions: optimize digestion and gut health (especially addressing dysbiosis and enhanced intestinal permeability), assess and replete nutrients, identify and remove food sensitivities, adopt an anti-inflammatory diet, balance the immune system (especially via T-regulatory cells), reduce toxic exposure and burden, and manage symptoms, including improving sleep and reducing stress.

    For Graves in particular, consider:

    • Herbs that suppress thyroid hormone production naturally
      • Bugleweed (usually the most effective but may have synergistic efficacy when combined with the following two as well)
      • Lemon balm
      • Motherwort
      • HerbPharm makes a tincture that combines all three in lower doses if needed for long-term use.
      • If these are used, thyroid function should be monitored closely. Consider adding one at a time in order to ensure they are well tolerated (and, of course, factor in any allergy considerations).
    • Eliminate known exposure to fluoride as her thyroid may be particularly vulnerable to toxicity from this element (e.g., toothpaste, fluoridated municipal water, tea). Chlorine, fluorine, and bromine compounds can all directly interfere with the appropriate action of iodine in the body, including the formation of thyroid hormone.

    Testing you may want to consider pursuing:

    • Micronutrient testing (especially to assess nutrients that are critical for well-balanced immune function – vitamin D, vitamin A, Zinc)
    • Food sensitivity testing (combo IgA and IgG or IgG with complement). I really like KBMO testing.

    Since she’s taking medication and is currently in a flare, any supplements should be discussed with her physician to make sure it’s safe for her to do so.

    • Kkol

      Member
      January 11, 2025 at 12:03 pm

      One more thing re/supplements. Unfortunately doctors have no clue. She wanted to do parasmart tarfeted parasite cleanse two weeks and he had no clue so she started it

  • Kkol

    Member
    January 11, 2025 at 12:02 pm

    Thank you B. Any idea about RF ablation for the nodule. She seems looking into this currently after everything calms down

    • Bernadette_Abraham

      Administrator
      January 12, 2025 at 7:38 am

      @Kkol it’s definitely an option to consider especially with a choking sensation since it’s minimally invasive. By the way, the name of the endocrinologist given to me by my friend is Dr Donatella Casiglia at Mediclinic.

      • Kkol

        Member
        January 14, 2025 at 9:13 am

        Thank you B. Well noted!

        I need to ask you what are the down sides of anti parasite medication such as Vermox? It’s 3 days treatment.

        We don’t know if she has parasite but never done a cleanse and we aren’t sure if she can use now Parasmart.

        • Bernadette_Abraham

          Administrator
          January 14, 2025 at 4:37 pm

          @Kkol sometimes the inactive ingredients can be less than ideal (like titanium dioxide for example), and the side effects can be worse than herbal antiparasitic since they are stronger.

          But the bigger issue is effectiveness. While medications are fast-acting and targeted for adult parasites, 3 days is usually not enough time to get all the parasites since many of them have a complex lifecycle (eggs, larvae, adults). That’s where herbals outshine because they can be used longer term. With herbal antiparasitics, I usually recommend 15 day courses, followed by a 10-day break, and then repeat, which usually helps get the full lifecycle of a parasite if it was still in the egg stage.

          • Kkol

            Member
            January 14, 2025 at 11:06 pm

            Thank you 🙏🏼 maybe she should wait until the flare is calm so she can do the herbs so she doesn’t trigger immune system or thyroid activity

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